Lots of tears today, more to come
Today has been very tough. After talking with the doctors yesterday and again today, Dan has decided that he wants to only have comfort care.
That means that only things that are needed for his comfort will continue. They already disconnected his IV nutrition, he will not get his regular night medications, they have taken him off of telemetry (EKG monitoring), they will no longer do vital sign checks or blood sugar checks. He will no longer have to suffer through dialysis.
The nurses and doctors will still be here for him for his comfort. That means he can still have pain meds, it is his choice right now, he has a button to push to immediately get them. He can have medicine for anxiety if he needs it. He can have oxygen still. And they will keep the NG tube in and keep it on suction because it is relieving lots of pressure in his stomach. And tomorrow the Hospice team will come evaluate him and most likely put him officially on hospice. Which just means things will continue as above, they will just monitor and ensure he is comfortable.
We will stay in this same room. We all agree that is the best option too. It’s not the biggest room, but the best thing and actually what Dan prefers too.
Everything we are doing right now is what Dan wants and we (his family) are fully in support of it. We agree with him and are confident that this is the best decision, it’s just not one that anyone ever wants to make or go through.
Please keep him in your thoughts and prayers over the next few days. I don’t know how often I will post right now, sometimes it’s too tough to even think about, but sometimes it’s even a little therapeutic.