Category Archives: Misc
Just wanted to say I’m so thankful for so many things right now. A big one of course is that Dan is with us and doing pretty good right now. I’m also so thankful for all of the support that we received through this transplant journey. I think back to all the comments and people that prayed for us, it still just overwhelms me and brings tears to me eyes.
Great Stride Team Meyer shirts are now for sale!! They cost $10 each. We have adult unisex small, medium, large and extra large available. If you would like to order kid/youth sizes, contact me ASAP!
Order your shirt now to guarantee one for the Great Strides walk! You can email, call, text, reply to this post, etc, if you’d like to order one. If you have any questions, let me know!
Here are what the shirts look like.
I want to add a note about the Great Strides CF Walk to make sure everyone understands… The walk is free. You are not required to preregister. You are not required to donate or fundraise. It’s very simple.
The walk has a different meaning for different individuals, but I feel the walk is about supporting those with CF. If you are able, we would love to see you support those with CF at the walk on June 15th (9am check-in, 10am walk starts) at Sam Johnson Park in Redmond Oregon. Come join us for a fun walk and a Team Meyer BBQ afterwards!
And one more thing, you are not required to actually walk at the walk.
Dan and I missed the Great Strides walk last year, but we had lots of family and friends there supporting us! This was our team last year.
Last year our team name was Team Big Dan. Our family and friends chose that name to celebrate Dan getting his transplant. This year we decided on Team Meyer because Dan isn’t the only one in his family with CF. He has three other brothers with it.
Come join us this year! It will be a lot of fun! To donate or join our team, go to our Team Meyer home page.
Two weeks to go until the walk!
Great Strides walks are family-friendly events with food, fun, and music. Join us at Sam Johnson Park in Redmond on June 15th at 9am for our local Great Strides walk.
Your participation will help fuel lifesaving research and medical programs that make a difference for people living with the disease.
It’s easy to sign up — just visit my Great Strides home page and click on “Join My Walk Team!”. Then, follow the step-by-step instructions to register for the walk. It’s free to sign up, so you get to choose how much you would like to donate. Any amount is greatly appreciated!
If you are unable to attend the walk, you can still support Team Meyer by sponsoring us with a donation. Visit my Great Strides home page and click on “Donate”. All of the money goes to the CF Foundation, which is a nonprofit organization that is determined to find a cure for CF.
Feel free to contact me, if you have any questions!
Dan got released from the hospital Wednesday late afternoon. The pulmonologist doctor was a little cautious about releasing him, but he consulted with the local infectious disease doctor and he thought it was fine. They are still waiting for the cultures to grow from the bronchoscopy to know more about why Dan is sick. He is doing slightly better, but still having shortness of breath when doing anything. The pulmonologist was worried that they may not be treating him with the correct medications, so he potentially could get worse fast. So we are be cautious, but none of his symptoms have changed or gotten worse yet.
Two days ago Dan woke up having some pretty bad shortness of breath and his oxygen saturation was low (around 90%) all while just laying in bed. He called his doctors, the local doctor couldn’t get him in till 4pm, so we went to the ER. Waiting until 4pm was out of the question. It didn’t really matter anyways, they would have wanted to admit him too. After 6 hours in the ER, he got moved up to the IMCU. In the ER they did blood work, EKG, chest X-ray and decided it was a type of pneumonia.
The doctor said it would just be a one night stay, but that usually is never the case. The next morning, they did more blood work and a bronchoscopy to see more of what was going on. The bronch went fine. The doctor said Dan’s white blood cells are down (which they’ve been down for a week) and he wanted to wait till the next morning to see some of the preliminary results of the bronch before he sends Dan home.
So now we are on the second morning. Hoping the doctor will come by sooner, rather than later, to release him.
This is my morning view.
Well, the doctor called the other day with the results of the bronchoscopy. The reason why Dan wasn’t feeling well is because he had pneumonia. The doctor prescribed some antibiotics for him. Yesterday he saw his doctor in Seattle for a check up and it went well. The doctor said he is improving and his PFT’s are stable. He wants him to do another PFT in three weeks, which he can do here locally.
He asked the doctor again, I think for the third time, if there was anything he could do about his hands cramping. The doctor still didn’t have any good suggestions. Dans blood work is fine, so it’s not electrolytes. He thinks its his tacrolimus (anti-rejection) medicine. He suggested trying a neurologist since its such a problem/annoyance. Every time Dan does any kind of work with his hands, they cramp really bad, like the worst charlie-horses ever.
Dan got discharged from the hospital around 11:30 this morning. It’s like we were gone on vacation, there’s a bunch of laundry to do, our pets missed us and there’s no food in the fridge. 😊
The doctor told us his white blood cells and T cells are way low, so the medicine worked. Because his immunity is low, he shouldn’t be around anyone that is sick, so we will have to be super careful for awhile. If he got a cold, it has potential to be serious.
Dan is doing good. The only side effects from the horse ATG he noticed is fatigue, high blood pressure and high blood sugars. The last two are being treated with meds. All of these should settle back down now that he is not having the infusion anymore.